World Prematurity Day 2017

Join us and help raise awareness of preterm birth

Friday, 17th November 2017 is World Prematurity Day and the National Premmie Foundation is once again participating in the international campaign to raise awareness of preterm birth. Each year Worldwide, 15 million babies are born too soon. Approximately 25,000 of these babies are born in Australia. We want everyone to honour the 15 million babies who struggled to survive this year and over 1 million babies who sadly lost their fight for life. cansite

The rate of preterm birth is increasing and yet the general public knows little about the prevention of preterm birth and the problems and risks involved in the development of a preterm infant. Preterm or premature birth, birth before 37 weeks gestation, is the second leading cause of newborn death globally. Babies who survive an early birth often face the increased risk of health challenges such as breathing problems, cerebral palsy, intellectual disabilities and many other hurdles. For many families, preterm birth brings with it neonatal or infant loss. So we want you to join the campaign to raise awareness of the issues these vulnerable newborns and their families face.

The National Premmie Foundation is a founding member of the World Prematurity Network. This means we have joined together with March of Dimes (USA), The European Foundation for the Care of Newborn Infants (Europe), LittleBigSouls (Africa), Bliss (UK), Home for Premature Infants (China), the Born Great Foundation (Africa), Con Amor Venceras (Mexico) and Canadian Premature Babies Foundation to raise awareness and change the lives of babies born too soon everywhere. Read Here

 

How you can get involved

We are asking people throughout Australia to get behind World Prematurity Day.

Landmarks in major cities across the globe including Australian capital cities will be light up purple to honour the 15 million babies born too soon and to remember the 1 million who lost their fight to survive.

 

To participate

  • Change your profile picture on Facebook ( images are available here)
  • Purchase your very own candle for our Light it up purple campaign via our online store
  • Join the official World Prematurity Day Facebook page and add your story
  • Light your candle on the 17th November 2017 @ 7pm; take a photo of you and your family with the candle and post it on the NPF Facebook and the Official World Prematurity Facebook pages.
  • Make a donation online so that the National Premmie Foundation can continue its important work or simply in honour of someone whose life has been touched by a preterm birth.

 

Spread the word

We invite everyone to help spread the word about the 17th November 2017. You can update your Facebook profile image and even your cover photo, place a WPD banner on your website or blog (linking to our website), share the link to our online store so your family and friends can purchase a candle and join in celebrating the day.

Donations over $2 are tax deductible.

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Spread the Word – World Prematurity Day Banners

 We invite everyone to help spread the word about the 17th November 2016. We encourage you to update your Facebook profile image, your cover photo, place a WPD banner on your website or blog, share the link to our online store so your family and friends can purchase a candle and join in celebrating the day.

Our banners are available below in different sizes.

Please right click the image and “save as”. Attach the banner to your your web site to help promote the event and remember to link the banner to (http://prembaby.org.au)

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Volunteer For Our Charity

The National Premmie Foundation is run solely by volunteers, mostly from the comfort of their own homes. We are always looking for people who are passionate in helping to support families, our charity and the great work that we do to raise awareness of premature birth in the community.

If you would like to nominate a committee position for our upcoming Annual General Meeting (AGM) being held on Sunday, 30th August 2015 (via skype), please fill out the online form below.

All positions will be declared vacant at the meeting.

President
Vice President
Treasurer
Secretary
Communications/Media Officer
General Committee Members (2)
World Prematurity Network Representative (selected from the elected Management Committee).

 

Your Full Name (required)

Your Email (required)

Your Phone Number (required)

Your Address (required)

Your Postcode

State

Please let us know what committee position you are interested in

Please indicate your availability
(Number of days per week you can assist)?

When can you commence volunteering?

Have you ever volunteered for a charity?

What has inspired you to volunteer for the National Premmie Foundation?

Do you have any specific skills/qualifications/experience that you would like to let our committee know about?

Please let us know if there is anything else that you would like us to know.

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Why is there a World Prematurity Day?

Around the globe each year 15 million babies are born too soon, sadly around 1 million of these babies will not survive.

In 2008, the idea came about to raise awareness of the serious issues that these babies and their families face and since then the day has gained more and more support and each year has gone from strength to strength.

In 2009, the National Premmie Foundation joined forces with international groups, March of Dimes (USA), LittleBigSouls (Africa) and EFCNI (Europe) to raise awareness of the serious issues that these babies and their families face.

In 2010, the Foundation officially celebrated its first World Prematurity Day in Australia after moving our annual National Premmie Day celebrations from July to November in recognition of the world joining forces to make a difference.

In 2011 and 2012, further international groups, Bliss (UK) and Home for Premature Babies (China), joined the World Prematurity Network. Unified together, we can make a difference and raise the voice of prematurity in the public domain.

2012 was an important year for the World Prematurity Network with the release of the “Born Too Soon” The Global Action Report on Preterm Birth. This Report features the first ever estimates of preterm birth rates by country and forms part of the United Nations Global Strategy for Women’s and Children’s Health.

In 2013, the Foundation celebrated World Prematurity Day on Sunday 17th November 2013 together with the World Prematurity Network and our 4 charity members in Australia.

In 2014, further international groups, Born Great Foundation (Africa), Con Amor Venceras (Mexico) and Canadian Premature Babies Foundation joined the World Prematurity Network. Australian groups, Premmie Promise Foundation, Tiny Sparks WA and Walk with Wings joined our Foundation as new charity members.

In 2015, We look forward to celebrating World Prematurity Day on Tuesday, 17th November 2015 with the World Prematurity Network and our charity members in Australia.

The “Born Too Soon” report is available to download in PDF format.

Click on the image below.

 

 

 

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Who We Are

The National Premmie Foundation (NPF) works to raise awareness of premature birth and neonatal loss.  Its aim is to ensure that all prem parents receive the information, care and support they need to make an extremely difficult time just that little bit easier.

The National Premmie Foundation (NPF) is the peak national organisation in Australia for parents who experience premature birth or neonatal loss. It consists of a network of individual members and member groups from across Australia making it the largest organisation in Australia representing the interests of families of preterm infants. The majority of our members are parents who have experienced premature birth or neonatal loss.

 

What does the National Premmie Foundation do?

* Raise awareness of preterm birth

* Represent the interests of parents of prems in terms of hospital policy, health policy, funding and standards of care

* Raise the profile and awareness of the plight of NICU/SCN infants and their families and the issues surrounding their care and long term development

* Work as part of an International Alliance to reduce the incidence of preterm birth

* Co-ordinate World Prematurity Awareness Month and World Prematurity Day (which occurs in November each year) activities throughout Australia

* Link parents with the group best suited to meet their need for care and support.

* Facilitate and assist with the formation of new groups so that all parents have access to the support they need.

 

Our Network of Charity Groups

The founding groups include Preterm Infant’s Parents Association (PIPA), Loddon Mallee Kids, Life’s Little Treasures Foundation and NNICUPS . Our current member groups are L’il Aussie Prems Foundation,  Yasminah’s Gift of Hope, The Premmie Promise Foundation, Tiny Sparks WA, Preterm Parents Infants Association and Walk with Wings.

The National Premmie Foundation was established in 2007 and together with our network, we have a combined total of over 50 years experience in supporting families who experience premature birth or neonatal loss.

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Premmie Promise Foundation

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Walk With Wings

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Volunteer

The National Premmie Foundation is run solely by volunteers. We are always looking for people who are keen in helping to support our charity and the great work that we do in raising awareness of premature birth globally through World Prematurity Day on the 17th November each year.

Our Committee Meetings

Our committee meet monthly on the 1st Sunday of each month. Due to our committee members being spread far and wide and living in different states around Australia, our meetings are held via Skype at night from 9pm.

Our Foundation appreciates the dedication from our volunteers who provide their support and who each bring a variety of skills and backgrounds to assist our charity.

There are many different ways in which volunteers can assist the NPF;

  • Becoming a part of the management committee
  • Helping to assist us in the coordination of our annual events
  • Helping with social media (Twitter & Facebook)

Are you interested in volunteering for the National Premmie? Fill out the form below and let us know.

Your Full Name (required)

Your Email (required)

Your Phone Number (required)

Your Address (required)

Your Postcode

State

Please let us know what committee position you are interested in

Please indicate your availability
(Number of days per week you can assist)?

When can you commence volunteering?

Have you ever volunteered for a charity?

What has inspired you to volunteer for the National Premmie Foundation?

Do you have any specific skills/qualifications/experience that you would like to let our committee know about?

Please let us know if there is anything else that you would like us to know.

Enter the code below

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Tiny Sparks WA

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Tiny Sparks WA’s vision is to improve the health and wellbeing of mothers enduring high risk pregnancies, newborns requiring the neonatal intensive care unit or special care nursery, and the communities supporting them in Western Australia.

The founding families of Tiny Sparks WA are Bronwyn and Mark Rose, Amber and Russell Bates, and Madalyn Da luz and Callan Phipps. Their last pregnancies were all impacted by preterm premature rupture of membranes (PPROM), resulting in the premature birth of their sons.

It is the gratitude the families felt for the amazing medical professionals involved in the world of maternal fetal medicine, neonatology, research and support services as well as the obvious benefits of peer support that provided the motivation to start this charity. It is the spark their tiny sons showed as they were fighting to live, that inspired the name.

Launched February 2014, Tiny Sparks WA is the first organisation in Australia to support families facing high-risk pregnancy, and the first Western Australian based organisation to support families with newborns requiring the NICU or SCN. The founders decided that a local focus was imperative to ensure the unique needs that come with the distances in WA are met. The fact is that only KEMH specialises in high-risk pregnancy, and there are only two neonatal intensive care units in WA, both located in Perth.

Join their Facebook page 

www.tinysparkswa.org.au

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The Premmie Promise Foundation

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In 2012 many of our lives were changed forever  when we were introduced to the world of the Micro prem with long battles ahead and friendships forged along the way  and because of our journeys being still fresh in our minds we created The Premmie Promise Foundation.

With encouragement ,tears, laughter and joy we celebrated every milestone together sometimes with sadness as our precious bundles hit hurdle after hurdle …but still they hung on giving us all hope.

Many tears in the corridors as some of our amazing wee champions didn’t win the battle and grew their Angel wings and it is for those still fighting their battle or those that need us .

This Charity was created by strong bonds of friendship that continue to grow every day, to remember our individual journeys and to remind us of how far we have come, to give hope and encouragement to those who have now filled our cot numbers and our shoes as parents on  their new journey…to remind us all that we do not walk alone we are right there … as we ourselves have walked in those shoes and tread those corridors… to remember that a Premmie family doesn’t just stop when you get home its about giving continued support to those at home from birth to teenage years .

 

 

 

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Infographic showing the global toll of premature birth

Help us spread the word! Share the World Prematurity Day infographic that shows the global toll of premature birth, including Australia’s stats.

 

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